Local Organizing Committee
Chair:
Dr. Ichiro Kanazawa (Former President, Science Council of Japan)
Members:
Prof. Junji Annen (President, PRIP Tokyo)
Mr. Tateo Itoh (President, JPA)
Prof. Yasuhito Itoyama (Hospital Director, National Center of Neurologyand Psychiatry Hospital / Director, Center for RD study in Japan)
Dr. Hidehiko Saito（Hospital Director, Nagoya Central Hospital）
Dr. Seiji Suganuma (MD, former President, Canbas Co. Ltd.)
Dr. Naoko Yamamoto (Department Chief, Diseases Control Division, MHLW)
Mr. Nobuaki Kobayashi (Support Network for Pediatric RD Patients)
Dr. Min-Chieh Tseng (Vice President, Taiwan Foundation for Rare Disorders, Taiwan)
Dr. Myeong-Chan Cho (Director, National Institute of Health, Korea)
Dr. Li Dingguo (China)
Global Organizing Committee
Chair:
Domenica Taruscio (Director National Centre for Rare Diseases Istituto Superiore di Sanità, Italy)
Members:
Domenica Taruscio (Director National Centre for Rare Diseases Istituto Superiore di Sanità, Italy)
Stephen Groft (Director, Office of Rare Diseases,
Virginia Liera (President,
John Forman (Executive Director, New Zealand Organization for Rare Disorders, New Zealand)
Marlene Haffner (Executive Director, Regulatory Affairs at Amgen, Inc. USA)
Jan-Inge Henter (Professor in Clinical Child Oncology, Karolinska Institute, Sweden)
Catarina Edfjäll (Head of Regulatory Affairs Europe, Celgene International, Schweiz)
Erik Tambuyzer (Senior VP Public Policy, GENZYME Corp,
Kerstin Westermark (COMP Chairperson, European Medicines Agency , Sweden)
Manuel Posada (
Tim Coté (Director, FDA Office of Orphan Products Development,
Luis Barrera (
Ass. Prof. Yukiko Nishimura (PRIP Tokyo, Assistant Professor of The Tokyo University, Japan)
Secretariat Office
Chief Secretariat:
Ass. Prof. Yukiko Nishimura (Board member, PRIP Tokyo, Ass Prof., RCAST, Univertsity of Tokyo)
Secretariat:
Dr. Yoh Terada (PRIP Tokyo)
Dr. Kazuki Ohno (PRIP Tokyo)
Futa Mimoto (PRIP Tokyo)
Yoshiaki Nakagawa (MHLW)
Hisato Araki (MHLW)
Satoshi Mano (MHLW)
Koji Mizutani (JPA)
Dr. Tomoko Kodama (National Institute of Public Health, Japan)
Désirée Gavhed (Karolinska Institutet, SWEDEN)
