The 7th ICORD in Tokyo was a success with more than 280 participants from 21 countries all over the world.

Information from the meeting will be available on the website later.


Due to the consequences of the earthquake in Japan, we are very sorry to announce that the next ICORD meeting planned to be held 21-23 May, 2011 in Tokyo postponed to a 4-6th, 2012.

We closed registration at February 1st, 22pm (JST).

Poster abstract  deadline extenced to December 31st, 2011.


VII International Conference on Rare Diseases and Orphan Drugs


A global meeting on international cooperation and public health policies focussing on research, diagnosis, development of and access to treatment, and care for rare diseases, will be held in Tokyo (February, 4-6th, 2012)

WHO should attend?

The VII ICORD Conference will offer a platform for the exchange of perspectives for medical and healthcare professionals, patients and patients’ groups, basic and clinical researchers, policy-makers, government officers and pharmaceutical, biotechnology and medical device industries.


organized by a global panel to improve the welfare and wellbeing of patients with rare diseases and their families world-wide through better knowledge, research, treatment, care, information, education and awareness of rare diseases.

The number of patients with each rare disease is very small in each country, but rare diseases do not know country boundaries. Consequently, they are best studied internationally. Attend this conference for the opportunity to join discussions of the ideas and global needs of the rare disease community. You will also meet key members of the international community involved in policies, diagnosis and treatment of patients with rare diseases.








Last update date   January 31st, 2012

Start of the online registration     October 20th, 2011

Deadline for submitting abstracts of Poster presentation     December 15th, 2011 (Deadline extended to December 31st, 2011)


If you have any questions or need more information, please e-mail as follows;